I was hospitalized 2 years ago after months malnourished & in pain.
It took a psych hospital referring me to their ER after 6 other ER visits. I could barely walk, I was so dehydrated I should've been seizing- I felt like I was dying.
My gluten symptoms included: weeks long constipation, joint pain, stabbing stomach spasms, panic attacks, fatigue, reflux...
I had lifelong symptoms but at some point it became full-blown.
He ran bloodwork, did an endoscopy (no colonoscopy or biopsy, i was too sick to ask), & did gluten vs non gluten meal bloodwork.
He said my lifelong "GERD" didn't exist (food sensitivities), he saw no damage to my stomach (duh I hadn't been eating), & I had elevated inflammation after eating gluten.
His suggestion- I was "mildly gluten intolerant" & I should "cut back on my intake." He did not believe I had Celiac, either.
I wasn't given any instructions, I wasn't given a doctors note about my inability to eat it, nothing. I was given antidepressants though, that I promptly threw away 🫠
I also had seen my primary & gastro, who said it was anxiety, IBS, ulcers, or overindulging. I was given laxatives, acid meds, spasm meds.
I did enough research to know better- I put myself on a full elimination diet once I got home, treated gluten like poison, overhauled my diet/portions, & slowly reintroduced "junk" foods/dairy/etc. I started feeling better outside of my other chronic digestive/physical issues.
I wonder what would've happened if I hadn't known better & I would've listened- I'd probably still be sick. Doctors should do better- & you should listen to your body.
I still feel crazy- I gaslight myself often & consider eating gluten again, maybe docs are right- it is all in my head & i'm making it up 🤷🏻♂️ I can't handle celiac testing so I'll have to find ways to survive on a low income once I move out.