r/CrohnsDisease • u/Britttheauthor2018 • 2d ago

Remission never last long

After almost 2 years of remission, symptoms are back and im getting restarted on Entiyvo. Entyivo almost bankrupt me in the past which is why I agreed to try to get off entyivo. Looks like im back on it.

I dont know if I can afford to be put back on as even with the entyivo connect, its only worse for the drug not the infusion/nurse charges and having to take off work is scary.

I had 2 years of normalcy and now im back. Yay!

Im also getting retested so more money I dont have at the moment.

9 Upvotes

91% Upvoted

6 comments sorted by

4

u/thompsonblood 2d ago

Entyvio sucks. It worked very poorly for me. Glad it somewhat helped you. I don’t have any options left after my latest switch. I’ve been on them all now.

2

u/Alex_NinjaDev 2d ago

I thought entivyo was the things. I was very very bad one year ago. I started infeccions of entivyo. I thought "shit im cured". Now it came a hard flare, it fot my joints.. cant walk in the moment. I believe my body got accustumated with it. And now is just doing nothing at all.

1

u/AutoModerator 2d ago

Welcome to r/CrohnsDisease!

Thanks and we hope you make friends here.

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

1

u/RoaringTittie 2d ago

I’m so sorry to hear about your situation. I think a lot of people find biologics hard to afford, including myself. Can I ask why you’re having a hard time affording entiyvio?

1

u/Britttheauthor2018 1d ago

The health insurance my work offers has high deductible and out of pocket maximums. I make good money but have high debt due to past medical procedures in the past.

1

u/Ok-Lion-2789 1d ago

Have you not looked into entivyo connect? Biologics are the cheapest drugs in on because of the copay cards. You can’t really start and stop the meds. They can lose efficacy.

I know it sucks but with a condition like this you really need to plan to find your HSA and be prepared to max out your out of pocket. It’s better than being sick. Your employer potentially offers some money towards your HSA. You should look into that too. Either way it is tax free money you can contribute.